What happened: Johnson now communicates through a device controlled by his eye movements. His wife, Brittany, manages daily care that includes two hours of stretching and therapy or massage four to five days a week.
Why it matters: The former All-Pro running back is raising awareness of a disease with no cure. He wants to see his four children reach milestones including graduations and weddings.
By the numbers: Johnson retired in 2018 after 10 NFL seasons, three Pro Bowls and a 2,006-yard rushing campaign in 2009. Approximately 5,500 Americans are diagnosed with ALS each year.
What to watch: Johnson continues experimental treatments and regular medical appointments while his family supports his care. His advocacy focuses on earlier diagnosis and additional ALS research.